This week we are going to have several things going on. Monday and Thursday are blood draws and on Tuesday we have Alyssa is having her Vincristine administered. This is the one that makes her hurt so bad but thankfully we know what helps her feel better so we will take her Oxycodone with us on Tuesday. It will be so nice to be done with all of this. Alyssa says she is getting a metallic taste in her mouth now from the treatment. Most food doesn't taste good to her. It is soooo hard to get her to eat because so many things taste funny.
Today was Nik's birthday and her is saving all his birthday cash for a Nintendo DSi.
We celebrated at home so as not to overdo Alyssa's energy levels. Poor Nik wanted to go to Red Robin and to a movie! But we will put that off. Thankfully with the icky stuff (blood draws, chemo treatments, CT scans etc.) there are some good stuff scattered in - we just found out the Make a Wish Foundation is coming over on Wed to talk to Alyssa about her WISH. Then on the 16th of May there is a foundation that pays for the UNM peds Oncology kids to go to Cliff's Amusement Park. That will be so much fun.
Well, I guess I will sign off for now - please pray for the Vincristine appt to go smoothly and for the blood draws to go well (no TPA appts etc.!!!)
Nothing new on the goat front except I shaved the buck - I'll do that as a separate post.
Showing posts with label Chemo update. Show all posts
Showing posts with label Chemo update. Show all posts
Sunday, April 26, 2009
Tuesday, April 21, 2009
I Feel Like Crying.
Here we are, back at UNMH, presumably for our last treatment. We've been doing
Chemo since around 3:30pm (they decided that if we start earlier we might get to go home earlier - I agree!!!) Alyssa and I were changed into our jammies just relaxing and hanging out
I'm beading and Aly is watching NCIS. I had just hung up the phone from talking to my family and saying goodnight. In walks in admitting and they want us to pay a $150 copay. ARE THEY KIDDING? At 9pm? IN my jammies just before Alyssa is going to get sick from the chemo (usually 3 hours after the last drug is administered though we started early tonight.) Talk about catching someone unawares. I mean, this is our 4th admission and they've never ever done this before so why now and why this late at night (turns out admitting is open 24/7) I guess they've changed policies and they are being asked to make sure folks pay their copays when they check in - hence the episode leading me to be escorted down to admitting at 9:30 at night. It's not that it that big of a deal but I knew these things were coming and I guess it caught me off guard. After the stress of the day - I just feel like crying. I just want to be here with my precious daughter to help her through these rough spots......not running around UNMH late at night paying bills. GRRRRRRR!!!
On a more positive note - this is our last treatment, Alyssa got the Suite (the Princess is getting the royal treatment) You should see this room - It's HUGE. It's got two windows and two extra beds in it. Very roomy...apparently this is the room the kids request (hm. no one told us that we could request a room!) Anyway. We also ran into K. Yep he's here again (every week are his treatments) he updated us on his lung surgery (the last time we were here he was coming out of surgery) and it turns out the nodules were nothing more than some scar tissue (praise GOD!!!!)
and he only has 5 more treatments after this one because his last evaluations showed a 90% or more reduction in cancer cells (another Praise!!!!!) I am Thanking our Father for answered prayer for K. I also heard that M is doing pretty good as well. GOOD NEWS!!!
Well, we are going to try to hit the hay soon and hope the anti-nausea drugs keep the nausea at bay and we can get some sleep!
Please pray for our friends the A family - their daughter is going to have to go back to Ohio for another "reconstruction" and to help her be better able to care for herself. It apparently is going to be a MAJOR surgery for this little 5 year old - they will have to spend about 2 months in Ohio for the surgery and recovery. i know this will be hard on the family and on this precious little one. Please pray for them all. Also, they have a young pregnant goat who is having some problems and they are very worried about their little one. This a very beloved family pet. (all of their animals are of cours - like ours!) Please pray they are able to find out what is wrong with their doe and that she will be fine and deliver her babies safely in one month.....
thank you all for letting me unload. Just had to get that off my chest.
Chemo since around 3:30pm (they decided that if we start earlier we might get to go home earlier - I agree!!!) Alyssa and I were changed into our jammies just relaxing and hanging out
I'm beading and Aly is watching NCIS. I had just hung up the phone from talking to my family and saying goodnight. In walks in admitting and they want us to pay a $150 copay. ARE THEY KIDDING? At 9pm? IN my jammies just before Alyssa is going to get sick from the chemo (usually 3 hours after the last drug is administered though we started early tonight.) Talk about catching someone unawares. I mean, this is our 4th admission and they've never ever done this before so why now and why this late at night (turns out admitting is open 24/7) I guess they've changed policies and they are being asked to make sure folks pay their copays when they check in - hence the episode leading me to be escorted down to admitting at 9:30 at night. It's not that it that big of a deal but I knew these things were coming and I guess it caught me off guard. After the stress of the day - I just feel like crying. I just want to be here with my precious daughter to help her through these rough spots......not running around UNMH late at night paying bills. GRRRRRRR!!!
On a more positive note - this is our last treatment, Alyssa got the Suite (the Princess is getting the royal treatment) You should see this room - It's HUGE. It's got two windows and two extra beds in it. Very roomy...apparently this is the room the kids request (hm. no one told us that we could request a room!) Anyway. We also ran into K. Yep he's here again (every week are his treatments) he updated us on his lung surgery (the last time we were here he was coming out of surgery) and it turns out the nodules were nothing more than some scar tissue (praise GOD!!!!)
and he only has 5 more treatments after this one because his last evaluations showed a 90% or more reduction in cancer cells (another Praise!!!!!) I am Thanking our Father for answered prayer for K. I also heard that M is doing pretty good as well. GOOD NEWS!!!
Well, we are going to try to hit the hay soon and hope the anti-nausea drugs keep the nausea at bay and we can get some sleep!
Please pray for our friends the A family - their daughter is going to have to go back to Ohio for another "reconstruction" and to help her be better able to care for herself. It apparently is going to be a MAJOR surgery for this little 5 year old - they will have to spend about 2 months in Ohio for the surgery and recovery. i know this will be hard on the family and on this precious little one. Please pray for them all. Also, they have a young pregnant goat who is having some problems and they are very worried about their little one. This a very beloved family pet. (all of their animals are of cours - like ours!) Please pray they are able to find out what is wrong with their doe and that she will be fine and deliver her babies safely in one month.....
thank you all for letting me unload. Just had to get that off my chest.
Monday, April 20, 2009
Tomorrow is it.
Well, tomorrow is the big day - in theory - the last Chemo treatment day.
Aly isn't really wanting to go in but neither does she want to put this off anymore!
So, tonight we will be packing up to go back in for 3 days. Child care is taken care of (Thank you LS, LA and Dear Hubby), meals are taken care of (Thank you LS for scheduling all of that!)
and I need to make sure my laundry is done. I have books to read, knitting and crocheting to do.
I think we are about ready...
Aly isn't really wanting to go in but neither does she want to put this off anymore!
So, tonight we will be packing up to go back in for 3 days. Child care is taken care of (Thank you LS, LA and Dear Hubby), meals are taken care of (Thank you LS for scheduling all of that!)
and I need to make sure my laundry is done. I have books to read, knitting and crocheting to do.
I think we are about ready...
Sunday, March 29, 2009
Chemo Update - We are going home!!!
Hope this isn't another false alarm but Dr. Mathew just came in and said he thinks he can write the ticket out of here today - Alyssa looks great and has NO nausea and vomiting. He wanted her to eat something and keep it down (she did have two slices of pizza and two fruit cups last night and kept it down) so she just ate a fruit cup to see if she can hang. He doesn't want to send her home and then her get sick and have to come back. We don't want that either so we will see if she can keep down the food so we can GO HOME!!! Guess I best consider packing and getting ready just in case. Maybe I can make a trip to the car to dump non essentials. It has been a much easier treatment than the last one - they said that does happen. Most people do better after the first treatment. Dr. Mathew said he couldn't feel anything in her neck either. PRAISE GOD!!!!!!!!! she actually looks good compared to where she was last time at this point in the treatment protocol. Our next check in date is April 17. We have clinic this coming Friday where she gets the 2nd Vincristine dose and has to be on Prednisone, GCSF, and Bactrim for the next week or so plus lots of blood draws etc. Alyssa wants to come back on Thursday night for the Teen support group so hopefully we can do that.
Thank you to everyone who has been bringing food to my family and taking care of us thru this
what a nice thing to be able to be at the hospital and not have to worry about my family at home - that they are well taken care of!
Please pray that she will not get sick once we get home and that this time around it will be a bit easier to take. We seem to be getting into a routine and figuring this all out (once we've got it down- we might be done!!! - But that's a praise report!!!!!) Also continue to pray for K and his family. They are still here and I know he's recovering from his lung surgery.
Blessings,
Deanna
Thank you to everyone who has been bringing food to my family and taking care of us thru this
what a nice thing to be able to be at the hospital and not have to worry about my family at home - that they are well taken care of!
Please pray that she will not get sick once we get home and that this time around it will be a bit easier to take. We seem to be getting into a routine and figuring this all out (once we've got it down- we might be done!!! - But that's a praise report!!!!!) Also continue to pray for K and his family. They are still here and I know he's recovering from his lung surgery.
Blessings,
Deanna
Saturday, March 28, 2009
What a GREAT Day!!!!
Today started off a bit on the rough side, as I posted earlier she was sick and very exhausted from the treatment last night. She slept most of the day and my mom relieved me so I could go to the goat show for a while. Storm didn't do well in the first show - no big surprise - he was his big ol' stinky, hairy self. We shaved off enough to where you could actually see how nice looking he was and he took Sr. Grand Champion and Reserve Champion Buck in the 2nd show under Judge Gary Whitehead. SO excited! To make matters even better I got back to the hospital to a wide awake, smily and even a tad perky daughter!!!! She is still tired but she's doing much better this time around than she did last time. Certainly was the cherry on top of the Sundae!!!
BIG SMILES!!!
Thank you all for all of your prayers, we are definitely getting positive answers and are being held up in HIS strength! Peace is flowing over us
Thank you to whoever brought dinner to my family (sorry my brain is fuzzy from lack of sleep last night and I know I was told but can't remember) To KF for taking my stinky little guy to the
show and to SH for showing him in the first show. To all the folks who donated stuff to the fundraiser at the show and to all those who participated! What a huge blessing it all was and to be there to enjoy everyone's company!
BIG SMILES!!!
Thank you all for all of your prayers, we are definitely getting positive answers and are being held up in HIS strength! Peace is flowing over us
Thank you to whoever brought dinner to my family (sorry my brain is fuzzy from lack of sleep last night and I know I was told but can't remember) To KF for taking my stinky little guy to the
show and to SH for showing him in the first show. To all the folks who donated stuff to the fundraiser at the show and to all those who participated! What a huge blessing it all was and to be there to enjoy everyone's company!
Friday, March 27, 2009
Hospital - Round 2
It's been quite a day! We got to the hospital around 9am and checked into the Oncology Clinic
They accessed her port and drew blood for some numbers (yes, they were high enough) and then went down to Nuc. Medicine for her PET/CT scan. Then back up to Oncology. We had a leaking tube on her port access so she had a messed up shirt. that was a bit insane. We had to have her port re accessed and of course it had to be cleaned etc. to make sure she doesn't get an infection in the line etc. UGH!!!! We got her checked into the PSCUnit for treatment after we went to Subway for lunch (at 2 pm) Poor kid was STARVING because she had to go in fasting.
The PET/CT scan came back GREAT!!!! Big time answered prayer there - they said the tumors looked like little pockets of dead cells. WAHOOO!!!!! We are soo excited. God is so good to us and we are just rejoicing like crazy. Tomorrow is the goat show - I will go for a little while to see everyone and to hopefully watch my Storm (buck) win!!!! Highly doubtful since he's an unshaved mess - hopefully the judge can look past his stinky nasy hairy self and see the beautiful buck he is underneath. We had a winter's last Hurrah! It got COLD and windy nasty (of course -hello, we had babies born -had to get cold and nasty, that's the way it works.
Also - Thank you SR for your second doe purchase - Z6 now CBF CS SG Ammi is now the herdmate to CBF TD SG Pepper.
They accessed her port and drew blood for some numbers (yes, they were high enough) and then went down to Nuc. Medicine for her PET/CT scan. Then back up to Oncology. We had a leaking tube on her port access so she had a messed up shirt. that was a bit insane. We had to have her port re accessed and of course it had to be cleaned etc. to make sure she doesn't get an infection in the line etc. UGH!!!! We got her checked into the PSCUnit for treatment after we went to Subway for lunch (at 2 pm) Poor kid was STARVING because she had to go in fasting.
The PET/CT scan came back GREAT!!!! Big time answered prayer there - they said the tumors looked like little pockets of dead cells. WAHOOO!!!!! We are soo excited. God is so good to us and we are just rejoicing like crazy. Tomorrow is the goat show - I will go for a little while to see everyone and to hopefully watch my Storm (buck) win!!!! Highly doubtful since he's an unshaved mess - hopefully the judge can look past his stinky nasy hairy self and see the beautiful buck he is underneath. We had a winter's last Hurrah! It got COLD and windy nasty (of course -hello, we had babies born -had to get cold and nasty, that's the way it works.
Also - Thank you SR for your second doe purchase - Z6 now CBF CS SG Ammi is now the herdmate to CBF TD SG Pepper.
Thursday, March 26, 2009
Deep Breath
Today we get ready to go back in for Treatment set 2. The biggest thing is that her blood counts be above 750 today - they were 704 on Monday. she has been having so much fun with her best friend and they are leaving today so I know that this will be hard. But we have stuff that will keep our minds off of heavy hearts. Just gotta get it all done in time.
Tomorrow is the PET/CT scan at 10am. We are supposed to check in at clinic after the PET/CT and then off to the PSCU to prepare for treatment. I hope we are prepared this time a little better. We bought drinks and some snack food that should be fine for her tender tummy.
I still have to go get Sprite. Then we have to pack bags (but need to finish laundry first!!!) .
The other kids will go to Grandma's. This weekend at the goat show is also the Fundraiser -
They are having a Silent Auction - if anyone wants to go - it is at the Livestock Pavilion at Expo NM. You can enter in thru gate 6 turn right immediately and the white building strait in front is the Pavilion (there is parking behind the building) Follow the sounds of goats hollering!!!!
It is not to late to donate if you want to the silent Auction - as far as I know Linda, Sandy, Heather and Donna are still taking donations.
Prayer Requests - I have several today- that the blood counts today are high enough for her to begin treatment tomorrow. (over 750) and that the CT/PET scan shows an 80+% in tumor reduction and no active cells so she doesn't have to do radiation or more chemo. Please pray for a friend of mine - I can give no details but just lift her and her family up and that God's peace and strength will just be upon them for the difficulties they are facing. For another friend who had to file bankruptcy due to the housing market insanity- for their peace and God's provision for them to get back on their feet. That the medications would work for Alyssa and that this Chemo won't be as hard as the last one was.
Praise Reports - her spirits have been high from her getting so spend 3 wonderful days with our friends. It really has been a boost for her.
Thank yous - To everyone who is praying for her to get thru this treatment, for those who are fasting for her tomorrow at Saturday during her treatments - Your devotion and support are soooooo appreciated! To my goat buddies who are putting on this fundraiser for us. Thank you all so much. SR for giving our little Pepper a home! The J Family for just coming and holding us up these past few days - for your distraction and shoulder to cry on. REALLY needed that!!!
Tomorrow is the PET/CT scan at 10am. We are supposed to check in at clinic after the PET/CT and then off to the PSCU to prepare for treatment. I hope we are prepared this time a little better. We bought drinks and some snack food that should be fine for her tender tummy.
I still have to go get Sprite. Then we have to pack bags (but need to finish laundry first!!!) .
The other kids will go to Grandma's. This weekend at the goat show is also the Fundraiser -
They are having a Silent Auction - if anyone wants to go - it is at the Livestock Pavilion at Expo NM. You can enter in thru gate 6 turn right immediately and the white building strait in front is the Pavilion (there is parking behind the building) Follow the sounds of goats hollering!!!!
It is not to late to donate if you want to the silent Auction - as far as I know Linda, Sandy, Heather and Donna are still taking donations.
Prayer Requests - I have several today- that the blood counts today are high enough for her to begin treatment tomorrow. (over 750) and that the CT/PET scan shows an 80+% in tumor reduction and no active cells so she doesn't have to do radiation or more chemo. Please pray for a friend of mine - I can give no details but just lift her and her family up and that God's peace and strength will just be upon them for the difficulties they are facing. For another friend who had to file bankruptcy due to the housing market insanity- for their peace and God's provision for them to get back on their feet. That the medications would work for Alyssa and that this Chemo won't be as hard as the last one was.
Praise Reports - her spirits have been high from her getting so spend 3 wonderful days with our friends. It really has been a boost for her.
Thank yous - To everyone who is praying for her to get thru this treatment, for those who are fasting for her tomorrow at Saturday during her treatments - Your devotion and support are soooooo appreciated! To my goat buddies who are putting on this fundraiser for us. Thank you all so much. SR for giving our little Pepper a home! The J Family for just coming and holding us up these past few days - for your distraction and shoulder to cry on. REALLY needed that!!!
Saturday, March 7, 2009
Better Now
After a long day the nurses used the anti- nausea drugs to bring Alyssa to a place where she is more comfortable and Yes - even chipper!!!!! Grandma is back at the hospital tonight with her
sweetie -pie. Grandma found something that Alyssa would actually eat - a croissant. YIPPEE!
I ran to the pharmacy which ended up taking an hour to pick up the last few things we had prescribed and need before she comes home. I do believe that she is feeling good enough to
not have to stay any longer than tonight. She said she's ready!!!!!! WE are praying Dr. Winter thinks so too! About Dr. Winter - he's got a reputation - not a bad one! He's the Dr. that wears bowties (Do they still make them?????) anyway, he came in today sans the bowtie and said he doesn't wear them on weekends! He's so cute (for a mature man/Dr.) And what a nice guy - he really cares about his patients. I am glad he's Alyssa's primary Dr. - NOT that any of the other Dr.s would have been less that awesome - I am absolutely sure they would be.
I took a two hour nap with Suzy and we have enough food to feed an army so I'm going to take a shower and do a little bit of the chores I need to do and then RELAX tonight.
Prayer Request - the kiddo in the room next to us is in severe pain - He/she cries a lot and you can tell they just hurt all the time. Of course the nurses try to make him/her feel as comfortable as possible but still - my heart just breaks for this one. Please pray that God would calm the pain of this little one. Also down the hall that we go thru to come and go there is a little baby who has been there at least as long as we have. I see the exhaustion of the parents - please pray for this baby as well and for the parents to be given the strength to carry on. I know this is hard on them and I just wish I could go give them a hug.
Praise - your prayers were heard - God really brought Alyssa around today and is making Grandma and mom happy with her progress so I know she'll get to come home tomorrow.
She even looked GREAT before I left the hospital around 2:30pm. I cried happy tears on the way home
sweetie -pie. Grandma found something that Alyssa would actually eat - a croissant. YIPPEE!
I ran to the pharmacy which ended up taking an hour to pick up the last few things we had prescribed and need before she comes home. I do believe that she is feeling good enough to
not have to stay any longer than tonight. She said she's ready!!!!!! WE are praying Dr. Winter thinks so too! About Dr. Winter - he's got a reputation - not a bad one! He's the Dr. that wears bowties (Do they still make them?????) anyway, he came in today sans the bowtie and said he doesn't wear them on weekends! He's so cute (for a mature man/Dr.) And what a nice guy - he really cares about his patients. I am glad he's Alyssa's primary Dr. - NOT that any of the other Dr.s would have been less that awesome - I am absolutely sure they would be.
I took a two hour nap with Suzy and we have enough food to feed an army so I'm going to take a shower and do a little bit of the chores I need to do and then RELAX tonight.
Prayer Request - the kiddo in the room next to us is in severe pain - He/she cries a lot and you can tell they just hurt all the time. Of course the nurses try to make him/her feel as comfortable as possible but still - my heart just breaks for this one. Please pray that God would calm the pain of this little one. Also down the hall that we go thru to come and go there is a little baby who has been there at least as long as we have. I see the exhaustion of the parents - please pray for this baby as well and for the parents to be given the strength to carry on. I know this is hard on them and I just wish I could go give them a hug.
Praise - your prayers were heard - God really brought Alyssa around today and is making Grandma and mom happy with her progress so I know she'll get to come home tomorrow.
She even looked GREAT before I left the hospital around 2:30pm. I cried happy tears on the way home
False Alarm.
Well, we aren't coming home today. even though she drank the requisite cup of Sprite AND a pear slice, she started feeling icky again and Dr. Winter said he wasn't comfortable sending her home looking like she did. He said he couldn't be the one who set us up for failure so he ordered another day of bed rest and fluids. He seems to think she will be spunky enough for being sprung tomorrow. I will certainly be glad for that and so will she - surprisingly she didn't argue with him though she of course wants to leave. I know she is resting comfortably right now - Thank you for calling Connie.
We've had a few tests of character lately -= the big ones being dealing with our health plan and the pharmacy. I was in tears when we left yesterday without the GCSF because the Health plan denied. Aaron called Customer Care and finally got it taken care of - for those of you who don't know GCSF helps the bone marrow make lots of blood cells so that she can produce what she needs to fight infections and this cancer. While he was there he was supposed to pick up 3 other prescriptions (1 Chemo, 1 to fight infection in her port just in case and a pepcid for side effects - they didn't have them ready despite them being called in HOURS earlier. ) AAAARGH.
We are trying to switch to a different pharamacy. Please pray that i don't blow a gasket over this stuff. Wouldn't be a very good witness but it is so frustrating to deal with the Health plan over all of this. The wording on their letters okaying her treatments etc. are HORRID - makes me want to scream as they seem so flippant about it all - AS IF they would be so casual with their own family members? NO - I'm sure they would be Johnny on the spot with their approvals if it were their children!!!!!! Like someone said yesterday - wonder what legal loophole that is supposed to create. Thankfully we have a team of Dr.s and Nurses on our side who want nothing more than this child to be cured and moving into the Survivor phase - they want to not see Alyssa anymore after the 3rd round of Chemo except for yearly checkups where they get to say - YOU are still in remission girl - see you next year and we can begin ticking off those years like my mom does!!!!!!
We've had a few tests of character lately -= the big ones being dealing with our health plan and the pharmacy. I was in tears when we left yesterday without the GCSF because the Health plan denied. Aaron called Customer Care and finally got it taken care of - for those of you who don't know GCSF helps the bone marrow make lots of blood cells so that she can produce what she needs to fight infections and this cancer. While he was there he was supposed to pick up 3 other prescriptions (1 Chemo, 1 to fight infection in her port just in case and a pepcid for side effects - they didn't have them ready despite them being called in HOURS earlier. ) AAAARGH.
We are trying to switch to a different pharamacy. Please pray that i don't blow a gasket over this stuff. Wouldn't be a very good witness but it is so frustrating to deal with the Health plan over all of this. The wording on their letters okaying her treatments etc. are HORRID - makes me want to scream as they seem so flippant about it all - AS IF they would be so casual with their own family members? NO - I'm sure they would be Johnny on the spot with their approvals if it were their children!!!!!! Like someone said yesterday - wonder what legal loophole that is supposed to create. Thankfully we have a team of Dr.s and Nurses on our side who want nothing more than this child to be cured and moving into the Survivor phase - they want to not see Alyssa anymore after the 3rd round of Chemo except for yearly checkups where they get to say - YOU are still in remission girl - see you next year and we can begin ticking off those years like my mom does!!!!!!
Friday, March 6, 2009
Hard D
Today was probably the hardest day so far. They started the Chemo drugs late last night and she was whammied today. She has been nauseous all day and they administered a drug to help the nausea which makes her sleep - because she sleeps all the time she is on IV drip.
It is so hard to see my happy, vibrant, slightly feisty 14 year old so "puny". I am praying hard that she will just perk up and say okay - I'm fine now - lets go home. Well, so far no - and they will administer two chemo drugs (3 last night) tonight - I feel like the air got knocked out of me watching her.
Thank you all for your prayers, scripture, and support.
Thanks Pam and Evelyn, Boyds and Traegers for visiting and bringing Alyssa alittle treat.
Thank you Boyd's and Sedillos for dinner. Thank you Jo and BJ & Family for the cards and well wishes, Also Thank you Aunt Nita for the cards. Thank you Lori for watering my chickens when I forgot!!!!!
Thank you Grandma for sitting with Alyssa last night and letting us go home and rest.
Thank you Melissa, Kim, Lauren and Ric T. for visiting with me and offering help or whatever we need - HUGS to you all.
It is so hard to see my happy, vibrant, slightly feisty 14 year old so "puny". I am praying hard that she will just perk up and say okay - I'm fine now - lets go home. Well, so far no - and they will administer two chemo drugs (3 last night) tonight - I feel like the air got knocked out of me watching her.
Thank you all for your prayers, scripture, and support.
Thanks Pam and Evelyn, Boyds and Traegers for visiting and bringing Alyssa alittle treat.
Thank you Boyd's and Sedillos for dinner. Thank you Jo and BJ & Family for the cards and well wishes, Also Thank you Aunt Nita for the cards. Thank you Lori for watering my chickens when I forgot!!!!!
Thank you Grandma for sitting with Alyssa last night and letting us go home and rest.
Thank you Melissa, Kim, Lauren and Ric T. for visiting with me and offering help or whatever we need - HUGS to you all.
Alyssa's Update
Yesterday Dr. Winter came in and gave us the whole run down on all of the meds/chemo she will be getting to kick this cancer. He is taking the least traumatic path for her and they are going to watch her close. Last night she started the Chemo and she was pretty dang scared. I can't say I blame her. She knows this is necessary but the side effects - if she gets them - are fairly daunting to anyone but I can't imagine for a 14 year old. She wanted us to take her home. I so wish I could have. I would have LOVED to. But I'd also LOVE to see my happy, healthy, fiesty teenager back. All the wonderful care, support and spoiling she's been receiving can't replace what she'd love to be doing - leading a normal life. I get a lump in my throat just thinking about it. She met with the teen group last night and the Chemo sort of took center stage so I didn't get to hear much about it. I'm sure I will find out today. I am hoping to keep it a sort of quiet day with very little visitors etc. IF she is going to have the side effects the Dr. said it would be today.
I'm still hoping they are minimal but you never know. IF she tolerates the drugs ok she gets to come home Sat which is better than Dr. Winter's original reply when asked - He said EARLY next week ! Yuck.
Prayer requests - please pray for Nik who is really having a tough time with the upheaval of his life. I never really realized how much he likes routine and "our normal life" . He is very stressed out and cranky from all this. Last night we just came home and hung for a little while with the babies which was great and then we came in, did a few things and went to bed. We all needed the rest badly and I think the late nights and early mornings of running to ABQ are getting to the kids.
Praise reports - Thank you LORD for Grandma offering to stay with Alyssa last night so mom, dad and kids could have some time. Grandma is a 30 year cancer survivor. She's been thru this and can probably understand what Alyssa is going thru better than any of us. She is awesome and has been a great companion to Alyssa and I thru this as well as just being there as a sounding board and of course her experience has made her uniquely equipped to help us all cope. She has good sound advice for surviving this intact - all of us!!!!!
Again Thank you Val for the AWESOME Boston Market Dinner you sent to us last night. It was all good and we ate ourselves silly and had some to share. Our refrige is full of leftover too so we know that Aaron has something to take to work for lunch also!
I am sure I'm forgetting someone or something - your kindness has not gone unnoticed, my brain is a little fuzzy at time from stress and lack of sleep so I don't always get folks who deserve Thanks recognized. But we do appreciate all you all have done!!!!!
I'm still hoping they are minimal but you never know. IF she tolerates the drugs ok she gets to come home Sat which is better than Dr. Winter's original reply when asked - He said EARLY next week ! Yuck.
Prayer requests - please pray for Nik who is really having a tough time with the upheaval of his life. I never really realized how much he likes routine and "our normal life" . He is very stressed out and cranky from all this. Last night we just came home and hung for a little while with the babies which was great and then we came in, did a few things and went to bed. We all needed the rest badly and I think the late nights and early mornings of running to ABQ are getting to the kids.
Praise reports - Thank you LORD for Grandma offering to stay with Alyssa last night so mom, dad and kids could have some time. Grandma is a 30 year cancer survivor. She's been thru this and can probably understand what Alyssa is going thru better than any of us. She is awesome and has been a great companion to Alyssa and I thru this as well as just being there as a sounding board and of course her experience has made her uniquely equipped to help us all cope. She has good sound advice for surviving this intact - all of us!!!!!
Again Thank you Val for the AWESOME Boston Market Dinner you sent to us last night. It was all good and we ate ourselves silly and had some to share. Our refrige is full of leftover too so we know that Aaron has something to take to work for lunch also!
I am sure I'm forgetting someone or something - your kindness has not gone unnoticed, my brain is a little fuzzy at time from stress and lack of sleep so I don't always get folks who deserve Thanks recognized. But we do appreciate all you all have done!!!!!
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